<?xml version="1.0" encoding="UTF-8"?>
<item xmlns="http://omeka.org/schemas/omeka-xml/v5" itemId="12974" public="1" featured="0" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://omeka.org/schemas/omeka-xml/v5 http://omeka.org/schemas/omeka-xml/v5/omeka-xml-5-0.xsd" uri="https://archives.christuniversity.in/items/show/12974?output=omeka-xml" accessDate="2026-05-21T13:46:51+00:00">
  <collection collectionId="5">
    <elementSetContainer>
      <elementSet elementSetId="1">
        <name>Dublin Core</name>
        <description>The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.</description>
        <elementContainer>
          <element elementId="50">
            <name>Title</name>
            <description>A name given to the resource</description>
            <elementTextContainer>
              <elementText elementTextId="64">
                <text>Articles</text>
              </elementText>
            </elementTextContainer>
          </element>
        </elementContainer>
      </elementSet>
    </elementSetContainer>
  </collection>
  <itemType itemTypeId="19">
    <name>Article</name>
    <description>Faculty Publications -Articles</description>
  </itemType>
  <elementSetContainer>
    <elementSet elementSetId="1">
      <name>Dublin Core</name>
      <description>The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.</description>
      <elementContainer>
        <element elementId="50">
          <name>Title</name>
          <description>A name given to the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78583">
              <text>Neuropalliative Care Needs Checklist for Motor Neuron Disease and Parkinson's Disease: A Biopsychosocial Approach</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="49">
          <name>Subject</name>
          <description>The topic of the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78584">
              <text>Checklist; Motor neuron disease; Neurodegenerative disorders; Palliative care needs; Parkinson's disease</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="41">
          <name>Description</name>
          <description>An account of the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78585">
              <text>Objectives: Neurodegenerative disorders necessitate comprehensive palliative care due to their progressive and irreversible nature. Limited studies have explored the comprehensive assessment needs of this population. This present study is designed to develop a checklist for evaluating the palliative care needs of individuals with motor neuron disease (MND) and Parkinson's disease (PD). Materials and Methods: The checklist was created through an extensive literature review and discussions with stakeholders in neuropalliative. Feedback from six field experts led to the finalisation of the checklist, which comprised 53 items addressing the unique biopsychosocial needs of MND and PD. Sixty patient-caregiver dyads receiving treatment in a tertiary referral care centre for neurology in south India completed the checklist. Results: People with MND had more identified needs with speech, swallowing, and communication, while people with PD reported needs in managing tremors, reduced movements, and subjective feelings of stiffness. People denying the severity of the illness was found to be a major psychosocial issue. The checklist addresses the dearth of specific tools for assessing palliative care needs in neurodegenerative disorders, particularly MND and PD. By incorporating disease-specific and generic items, the checklist offers a broad assessment of patients' multidimensional needs. Conclusion: This study contributes to the area of neuropalliative care by developing the neuropalliative care needs checklist (NPCNC) as a valuable tool for assessing the needs of individuals with neurodegenerative diseases. Future research should focus on refining and validating the NPCNC with larger and more diverse groups, applicability in different contexts, and investigating its sensitivity to changes over time.  2024 Published by Scientific Scholar on behalf of Indian Journal of Palliative Care.</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="39">
          <name>Creator</name>
          <description>An entity primarily responsible for making the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78586">
              <text>Zacharias L.; Thomas P.T.; Warrier M.G.; Yadav R.; Alladi S.; Nalini A.; Pal P.K.</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="48">
          <name>Source</name>
          <description>A related resource from which the described resource is derived</description>
          <elementTextContainer>
            <elementText elementTextId="78587">
              <text>Indian Journal of Palliative Care, Vol-30, No. 3, pp. 232-238.</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="45">
          <name>Publisher</name>
          <description>An entity responsible for making the resource available</description>
          <elementTextContainer>
            <elementText elementTextId="78588">
              <text>Scientific Scholar</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="40">
          <name>Date</name>
          <description>A point or period of time associated with an event in the lifecycle of the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78589">
              <text>2024-01-01</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="43">
          <name>Identifier</name>
          <description>An unambiguous reference to the resource within a given context</description>
          <elementTextContainer>
            <elementText elementTextId="78590">
              <text>&lt;a href="https://doi.org/10.25259/IJPC_181_2023" target="_blank" rel="noreferrer noopener"&gt;https://doi.org/10.25259/IJPC_181_2023&lt;/a&gt;
&lt;br /&gt;&lt;br /&gt;&lt;a href="https://www.scopus.com/inward/record.uri?eid=2-s2.0-85203447556&amp;amp;doi=10.25259%2FIJPC_181_2023&amp;amp;partnerID=40&amp;amp;md5=a2153489ab7317499347c582e97fb6ca" target="_blank" rel="noreferrer noopener"&gt;https://www.scopus.com/inward/record.uri?eid=2-s2.0-85203447556&amp;amp;doi=10.25259%2fIJPC_181_2023&amp;amp;partnerID=40&amp;amp;md5=a2153489ab7317499347c582e97fb6ca&lt;/a&gt;</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="47">
          <name>Rights</name>
          <description>Information about rights held in and over the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78591">
              <text>All Open Access; Gold Open Access; Green Open Access</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="46">
          <name>Relation</name>
          <description>A related resource</description>
          <elementTextContainer>
            <elementText elementTextId="78592">
              <text>ISSN: 9731075</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="42">
          <name>Format</name>
          <description>The file format, physical medium, or dimensions of the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78593">
              <text>Online</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="44">
          <name>Language</name>
          <description>A language of the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78594">
              <text>English</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="51">
          <name>Type</name>
          <description>The nature or genre of the resource</description>
          <elementTextContainer>
            <elementText elementTextId="78595">
              <text>Article</text>
            </elementText>
          </elementTextContainer>
        </element>
        <element elementId="38">
          <name>Coverage</name>
          <description>The spatial or temporal topic of the resource, the spatial applicability of the resource, or the jurisdiction under which the resource is relevant</description>
          <elementTextContainer>
            <elementText elementTextId="78596">
              <text>Zacharias L., Faculty of Health Science Social Care and Education, Kingston University, London, United Kingdom; Thomas P.T., Department of Psychiatric Social Work, National Institute of Mental Health and Neurosciences, Karnataka, Bengaluru, India; Warrier M.G., Department of Psychology, Christ University, Karnataka, Bengaluru, India; Yadav R., Department of Neurology, National Institute of Mental Health and Neurosciences, Karnataka, Bengaluru, India; Alladi S., Department of Neurology, National Institute of Mental Health and Neurosciences, Karnataka, Bengaluru, India; Nalini A., Department of Neurology, National Institute of Mental Health and Neurosciences, Karnataka, Bengaluru, India; Pal P.K., Department of Neurology, National Institute of Mental Health and Neurosciences, Karnataka, Bengaluru, India</text>
            </elementText>
          </elementTextContainer>
        </element>
      </elementContainer>
    </elementSet>
  </elementSetContainer>
</item>
