Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Articles Article Faculty Publications -Articles Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource An individualised psychosocial intervention program for persons with MND/ALS and their families in low resource settings Subject The topic of the resource family caregiving; low resource settings; Motor Neuron Disease; psychosocial care; social context Description An account of the resource Motor Neuron Disease (MND) leads to significant psychosocial distress for the person with the illness and caregivers. Psychosocial factors influence the management and quality of life to a significant degree. Objective: To develop individualised psychosocial intervention program for people with MND and their families in India. Methods: People with MND and healthcare staff were constructively involved in co-designing the intervention program in four phases adapted from the MRC framework: 1. A detailed need assessment phase where 30 participants shared their perceptions of psychosocial needs 2. Developing the intervention module (synthesis of narrative review, identified needs); 3. Feasibility testing of the intervention program among seven participants; 4. Feedback from participants on the feasibility (acceptance, practicality adaptation). The study adopted an exploratory research design. Results: Intervention program of nine sessions, addressing psychosocial challenges through the different stages of progression of the illness and ways to handle the challenges, specific to the low resource settings, was developed and was found to be feasible. People with MND and families who participated in the feasibility study shared the perceived benefit through feedback interviews. Conclusion: MND has changing needs and challenges. Intervention programme was found to be feasible to be implemented among larger group to establish efficacy. The Author(s) 2022. Creator An entity primarily responsible for making the resource Thomas P.T.; Warrier M.G.; Arun S.; Bhuvaneshwari B.; Vengalil S.; Nashi S.; Preethish-Kumar V.; Polavarapu K.; Rajaram P.; Nalini A. Source A related resource from which the described resource is derived Chronic Illness, Vol-19, No. 2, pp. 458-471. Publisher An entity responsible for making the resource available SAGE Publications Ltd Date A point or period of time associated with an event in the lifecycle of the resource 2023-01-01 Identifier An unambiguous reference to the resource within a given context <a href="https://doi.org/10.1177/17423953221097076" target="_blank" rel="noreferrer noopener">https://doi.org/10.1177/17423953221097076</a> <br /><br /><a href="https://www.scopus.com/inward/record.uri?eid=2-s2.0-85129882908&amp;doi=10.1177%2F17423953221097076&amp;partnerID=40&amp;md5=1978ff3b00e5ce697d04d5bbe42d284e" target="_blank" rel="noreferrer noopener">https://www.scopus.com/inward/record.uri?eid=2-s2.0-85129882908&amp;doi=10.1177%2f17423953221097076&amp;partnerID=40&amp;md5=1978ff3b00e5ce697d04d5bbe42d284e</a> Rights Information about rights held in and over the resource Restricted Access Relation A related resource ISSN: 17423953; PubMed ID: 35469482 Format The file format, physical medium, or dimensions of the resource Online Language A language of the resource English Type The nature or genre of the resource Article Coverage The spatial or temporal topic of the resource, the spatial applicability of the resource, or the jurisdiction under which the resource is relevant Thomas P.T., Department of Psychiatric Social Work, National Institute of Mental Health and Neuro Sciences, Bangalore, India; Warrier M.G., Department of Psychology, CHRIST (Deemed to be University), Bangalore, India; Arun S., Department of Counselling Psychology, Montfort College, Bangalore, India; Bhuvaneshwari B., Department of Psychiatry, St Johns Medical college and hospital, Bangalore, India; Vengalil S., Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bangalore, India; Nashi S., Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bangalore, India; Preethish-Kumar V., Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bangalore, India; Polavarapu K., Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bangalore, India; Rajaram P., Department of Psychiatric Social Work, National Institute of Mental Health and Neuro Sciences, Bangalore, India; Nalini A., Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bangalore, India