Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Articles Article Faculty Publications -Articles Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Development of Guidelines for Spouses Engaged in Home-Based Care of Persons With Motor Neuron Disease From Indian Context Subject The topic of the resource guidelines; home-based care; interpretative phenomenological analysis; motor neuron disease; spouse caregivers Description An account of the resource Background: The caregivers of persons with motor neuron disease (MND) have several needs that are usually not voiced on any platform. Aim: To explore the lived experience of spouses of persons with MND, identify their needs and develop guidelines for better home-based care. Method: An exploratory study with 3-point in-depth interviews among 13 participants was conducted. Participants were the spouses of persons with MND under treatment at a national quaternary referral center. The interpretative phenomenological analysis identified participants needs. These needs, with literature review synthesis, guided the drafting of guidelines, which was validated by experts. Results: The needs were emotional, social, care systems, and skills. The guidelines developed contained 2 sections (1) Information for the spouses: understanding MND, communication, symptom management, marital relationship, palliative care, and everyday life made easier. (2) Well-being of the spouse caregivers: well-being of the spouse caregivers, self-care, mental health, supporting carers in palliative care, where to find help. Conclusion: The guidelines can be developed as a manual for the caregivers and for training healthcare professionals working with neurodegenerative conditions. The Author(s) 2022. Creator An entity primarily responsible for making the resource Warrier M.G.; Thomas P.T.; Sadasivan A.; Nashi S.; Vengalil S.; Nalini A. Source A related resource from which the described resource is derived Journal of Patient Experience, Vol-9 Publisher An entity responsible for making the resource available SAGE Publications Inc. Date A point or period of time associated with an event in the lifecycle of the resource 2022-01-01 Identifier An unambiguous reference to the resource within a given context <a href="https://doi.org/10.1177/23743735221077535" target="_blank" rel="noreferrer noopener">https://doi.org/10.1177/23743735221077535</a> <br /><br /><a href="https://www.scopus.com/inward/record.uri?eid=2-s2.0-85124386166&amp;doi=10.1177%2F23743735221077535&amp;partnerID=40&amp;md5=423c906bcb970905dbcd25291dc142c7" target="_blank" rel="noreferrer noopener">https://www.scopus.com/inward/record.uri?eid=2-s2.0-85124386166&amp;doi=10.1177%2f23743735221077535&amp;partnerID=40&amp;md5=423c906bcb970905dbcd25291dc142c7</a> Rights Information about rights held in and over the resource All Open Access; Green Open Access Relation A related resource ISSN: 23743735 Format The file format, physical medium, or dimensions of the resource Online Language A language of the resource English Type The nature or genre of the resource Article Coverage The spatial or temporal topic of the resource, the spatial applicability of the resource, or the jurisdiction under which the resource is relevant Warrier M.G., Department of Psychology, Christ University, Bangalore, India; Thomas P.T., Department of Psychiatric Social Work, NIMHANS, Bangalore, India; Sadasivan A., Sampurna Montfort College, Bangalore, India; Nashi S., Department of Neurology, NIMHANS, Bangalore, India; Vengalil S., Department of Neurology, NIMHANS, Bangalore, India; Nalini A., Department of Neurology, NIMHANS, Bangalore, India