Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Articles Article Faculty Publications -Articles Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Palliative care in duchenne muscular dystrophy: A study on parents' understanding Subject The topic of the resource Children with duchenne muscular dystrophy; paediatric palliative care; parents Description An account of the resource Introduction: Duchene muscular dystrophy (DMD) is a neuromuscular disease of childhood, which has clear progression. The international standardized care guidelines for DMD suggest that palliative care is essential for the affected children. Objective: To explore the parent's understanding of palliative care services available for children with DMD and the challenges faced by them in utilizing the same. Methods: A cross-sectional qualitative exploratory study was conducted among six families of boys diagnosed with DMD. A semi-structured interview guide with prompts was used to conduct in-depth interviews which lasted for an average of 1 h. Thematic analysis was done to identify the pattern or themes. Results: The major themes identified were 'palliative care, living with DMD, awareness about palliative care services and challenges.' Awareness about palliative care services is the dominant theme identified as influencing rest of the experiences narrated by the parents of children with DMD. Discussion: Integration of palliative care services from an early stage of the illness can help the child to make transition from one stage to another stage of the illness. To ensure the utilization of the available palliative care services, there is a need to create awareness about it among the general public. Conclusion: Introducing the concept of palliation of symptoms and ensuring quality of life of the child with DMD by accessing the available services can aid the parents to reach out for help for their child. 2021 Wolters Kluwer Medknow Publications. All rights reserved. Creator An entity primarily responsible for making the resource Sadasivan A.; Warrier M.; Polavarapu K.; Preethish-Kumar V.; Nair M.; Keerthipriya M.; Vengalil S.; Sagar J.; Kishore T.; Nalini A.; Thomas P. Source A related resource from which the described resource is derived Indian Journal of Palliative Care, Vol-27, No. 1, pp. 146-151. Publisher An entity responsible for making the resource available Wolters Kluwer Medknow Publications Date A point or period of time associated with an event in the lifecycle of the resource 2021-01-01 Identifier An unambiguous reference to the resource within a given context <a href="https://doi.org/10.4103/IJPC.IJPC_259_20" target="_blank" rel="noreferrer noopener">https://doi.org/10.4103/IJPC.IJPC_259_20</a> <br /><br /><a href="https://www.scopus.com/inward/record.uri?eid=2-s2.0-85101978321&amp;doi=10.4103%2FIJPC.IJPC_259_20&amp;partnerID=40&amp;md5=a196ab7b77e74c9770645a5f30d1ea63" target="_blank" rel="noreferrer noopener">https://www.scopus.com/inward/record.uri?eid=2-s2.0-85101978321&amp;doi=10.4103%2fIJPC.IJPC_259_20&amp;partnerID=40&amp;md5=a196ab7b77e74c9770645a5f30d1ea63</a> Rights Information about rights held in and over the resource All Open Access; Gold Open Access; Green Open Access Relation A related resource ISSN: 9731075 Format The file format, physical medium, or dimensions of the resource Online Language A language of the resource English Type The nature or genre of the resource Article Coverage The spatial or temporal topic of the resource, the spatial applicability of the resource, or the jurisdiction under which the resource is relevant Sadasivan A., Department of Psychiatric Social Work, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India; Warrier M., Department of Psychology, Christ University, Bengaluru, Karnataka, India; Polavarapu K., Postdoctoral Fellow, Children's Hospital of Eastern Ontario Research Institute, Ottwa, Canada; Preethish-Kumar V., Department of Neurology, TRUSTWELL Hospitals, Bengaluru, Karnataka, India; Nair M., Department of Psychiatric Social Work, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India; Keerthipriya M., Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India; Vengalil S., Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India; Sagar J., Department of Child and Adolescent Psychiatry, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India; Kishore T., Department of Clinical Psychology, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India; Nalini A., Department of Neurology, TRUSTWELL Hospitals, Bengaluru, Karnataka, India; Thomas P., Department of Psychiatric Social Work, National Institute of Mental Health and Neuro Sciences, Bengaluru, Karnataka, India