Virtual leadership program for adolescents with muscular dystrophy: a process evaluation
- Title
- Virtual leadership program for adolescents with muscular dystrophy: a process evaluation
- Creator
- Sadasivan A.; Warrier M.G.; Thomas P.T.; Vengalil S.; Nalini A.
- Description
- Children with muscular dystrophy go through the challenge of moving into adolescence compounded with the challenge of living with a debilitating muscle disease. This paper describes the process evaluation of a group leadership program for adolescents with muscular dystrophy. A five-day online program was conducted for 14 participants, 12 males, and 2 females, between 13 and 18 years, beneficiaries of Mobility in Dystrophy (MIND) trust, Kerala, India. The sessions, which lasted around one and a half hours each, focused on self-discovery through a participatory strength-based approach. The participants feedback was thematically analyzed. The process evaluation parameters, fidelity, dose delivered and received, reach, and context were found to be effective. The 100% attendance of the participants and their perceived improvement in self-confidence, self-awareness, friends circle, skills-set, and leadership were identified as positive outcomes. Psychosocial intervention programs through the online platform, with structured follow-ups for adolescents with life-limiting conditions would be beneficial. 2024 Taylor & Francis Group, LLC.
- Source
- Social Work with Groups, Vol-48, No. 1, pp. 39-51.
- Date
- 2025-01-01
- Publisher
- Routledge
- Subject
- adolescents; group therpy; leadership program; muscular dystrophy; Process evaluation
- Coverage
- Sadasivan A., Department of Counselling Psychology, Montfort College, Bangalore, India; Warrier M.G., Department of Psychology, CHRIST (Deemed to be University), Bangalore, India; Thomas P.T., Department of Psychiatric Social Work, NIMHANS, Bangalore, India; Vengalil S., Department of Neurology, NIMHANS, Bangalore, India; Nalini A., Department of Neurology, NIMHANS, Bangalore, India
- Rights
- Restricted Access
- Relation
- ISSN: 1609513
- Format
- Online
- Language
- English
- Type
- Article
Collection
Citation
Sadasivan A.; Warrier M.G.; Thomas P.T.; Vengalil S.; Nalini A., “Virtual leadership program for adolescents with muscular dystrophy: a process evaluation,” CHRIST (Deemed To Be University) Institutional Repository, accessed February 24, 2025, https://archives.christuniversity.in/items/show/12585.